“A friend suggested I go to WECIL when I was struggling to fill out disability benefit forms I didn’t understand.
From the initial contact, I was responded to with so much care and thoughtfulness, and the advisor was incredibly knowledgeable in my specific area and very conscientious.
I had no idea that services like this existed – it completely opened me up to realise that I don’t always have to struggle alone.”
“WECIL helped me to apply for and access, the ESA benefit which gave me incredible relief and peace of mind quickly. That financial security is so important in the process of recovery from M.E.
It was strange because I realised I had never identified as disabled – and yet I have very definitely been quite seriously disabled over the past years. When I had my advice session, I was given a form to fill out and was totally shocked, thinking ‘ I really don’t identify’ but then spent ages filling out a form saying how severely disabled I had been. I have periods of wellness where I can function well enough, so I wouldn’t say was disabled in those times. But ironically it’s been such a relief to be open about it and get the support I need.
I realise now that I was completely clueless and just flailing around coping as best I could but with no energy to think of creative solutions. I have been more proactive since and realised that there are steps I can take and things I can put in place to make my life more manageable.”
Although it can be challenging to do some of the things she loves – like walking and dancing – Pikka still sings regularly.
When I sing I really feel I connect with my heart and the joy of being alive. It gives me a lot of hope.”